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篇名
乾癬與乾癬性關節炎病人決策參與的經驗分享
並列篇名
Experiences of Patient Decision-Making Participation in Psoriasis and Psoriatic Arthritis
作者 柯怡謀王雅馨
中文摘要

乾癬(psoriasis, PsO)病人面臨乾癬性關節炎(psoriatic arthritis, PsA)高併發風險,卻普遍缺乏相關認知,不僅難以在就診時提出具體問題,也增加了醫病溝通的挑戰。為協助病人獲得更具體的治療比較與討論基礎,社團法人台灣乾癬協會於2023年攜手皮膚科與風濕免疫科專家,共同開發以病人為導向並結合醫病共享決策(Shared Decision Making, SDM)理念的乾癬性關節炎治療選項決策輔助工具(Patient Decision Aids, PDA)。2024年,本協會進一步將PDA導入真實的醫病互動場景,舉辦以推廣與實測為目標的工作坊,驗證其在提升病人參與與縮減溝通落差上的實用性。本工作坊於2024年10月實體舉辦,規劃過程結合病友與專科醫師意見,並採用焦點訪談、專題演講、小組討論與交流座談等多元方式,出席率達71%。結果顯示,逾八成病友認為活動增進其治療理解並提升信心,醫師亦給予正面回饋。病友普遍期待PDA具備清楚資訊、圖像化呈現與個人化設計,醫師則指出病人參與及備孕相關議題仍有加強空間。前後測結果顯示,病友在PsA與SDM認知均有提升,顯示此工具具實用性與教育價值,適用於慢性病照護。

英文摘要

Patients with psoriasis (PsO) face a high risk of developing psoriatic arthritis (PsA), yet their awareness of this comorbidity remains limited. This knowledge gap often makes it difficult for patients to raise specific questions during consultations and poses challenges to effective patient–physician communication. To provide patients with a clearer basis for treatment comparison and discussion, the Taiwan Psoriasis Association, in collaboration with dermatology and rheumatology experts, developed in 2023 a patient-oriented decision aid (PDA) for PsA treatment options, incorporating the principles of shared decision making (SDM). In 2024, the Association further introduced the PDA into real-world clinical interactions by organizing a workshop aimed at both promotion and pilot testing, in order to examine its practicality in enhancing patient participation and narrowing communication gaps. The workshop was held in October 2024 in person. Its planning incorporated input from patients, dermatologists, and rheumatologists, and adopted a variety of approaches including focus group interviews, lectures, group discussions, and interactive sessions, with a participation rate of 71%. Results showed that over 80% of patients reported improved understanding of treatment and greater confidence, and physicians also provided positive feedback. Patients generally expected the PDA to provide clear information, user-friendly visualizations, and personalized features, while physicians highlighted that patient engagement and pregnancy-related issues require further attention. Pre- and post-test results indicated improvements in patient knowledge of both PsA and SDM, demonstrating the PDA’s practicality and educational value in chronic disease care.

起訖頁 067-069
關鍵詞 乾癬乾癬性關節炎醫病共享決策決策輔助工具psoriasispsoriatic arthritisshared decision makingpatient decision aids
刊名 醫療品質雜誌  
期數 202509 (19:5期)
出版單位 財團法人醫院評鑑暨醫療品質策進會
該期刊-上一篇 醫療場域性別平等案例之探討
 

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