因為罕見所以跨界—以跨專業團隊合作發展戲劇治療在遺傳性表皮分解性水皰症青少年之行動探究

An Action Research on the Development of Drama Therapy for Adolescents with Epidermolysis Bullosa through Interprofessional Team Collaboration

本研究旨在透過工作者之觀點探討戲劇治療運用於遺傳性表皮分解性水皰症（本文簡稱泡泡龍）青少年成員之團體方案實踐經驗。採行動研究，結合「行動」與「研究」，歸納整理2022年戲劇治療工作者於臺灣嚴重特殊傳染性肺炎（COVID-19）第二級疫情警戒下，針對七名成員進行住宿式戲劇治療團體方案，並透過訪談六位工作者，探索疫情期戲劇治療運用於泡泡龍成員之行動方案設計、執行歷程，及戲劇治療所展現之能動性為何。本研究結果發現：（一）以實體結合線上的戲劇治療團體，讓成員能衡量自我身心狀態，提升參與的意願與可能性，且能營造兼具「治療深度」與鍊結「人際廣度」的平台，達到成員彼此間情感的支持與共鳴。（二）帶領者彈性調度、使用、創造活動空間與內容，以因應環境的不確定因素，能拓展成員被侷限的生活經驗。（三）行動方案以「過年」為主軸，營造過渡性的空間使成員能安頓身心，梳理生命故事。（四）自傳劇的創作與展演，使成員從被公共觀看的經驗中找到生活的意義感，而透過觀眾的回應可以讓觀演雙方建立非單一病理觀點，從而找到認識與理解的新視角。（五）行動前的核心價值帶來動能、行動中的工作彈性創造團體效能、行動後找回初衷的反思創造出再行動的反映。依據本研究結果可提供未來戲劇治療運用於罕見疾病泡泡龍成員之研究與實務應用之參考。

 

The purpose of this study is to investigate the experience of using drama therapy in group programs for members with hereditary epidermolysis bullosa (EB) through practitioners’ perspectives.

This study used qualitative action research as the analytic method. Through semi-structured interviews with six drama therapy practitioners, the study explored the design of the action plan, the implementation process, and the therapeutic factors of drama therapy in serving EB members during the covid-19 epidemic. The findings of this study revealed that: (1) The "physical" combined with "online" group approach can enhance the members’ willingness and possibility to assess their physical and mental state and participate in the group. (2) By combining "physical" and "online" group approaches, we can create a platform that combines "therapeutic depth" and "interpersonal breadth" to achieve emotional support and empathy. (3) During the epidemic, workers flexibly allocate, use, and create activity space and content to expand the limited life experiences of members. (4) The action plan uses "Chinese New Year" as a metaphor to create a transitional space for members to settle down and to organize their life stories through theater activities. (5) The creation and performance of the autobiographical drama allows members to express their repressed emotions and thoughts to find a sense of meaning in their lives, and also allows the audience to build an understanding and appreciation of the non-single pathological perspective of EB members.