| 英文摘要 |
Early intervention for children with special needs often begins with medical evaluation, and parental involvement has become a critical issue in this process. This study explored parents’experiences and perceptions of their child’s developmental assessment in medical institutions. Using a qualitative research approach, six parents of children with autism spectrum disorder, developmental delay, hearing loss, or ADHD were interviewed. Data sources included interviews, medical reports, and video records provided by parents, which were coded, analyzed, and triangulated for accuracy.
Findings revealed three main stages of parental experience. Before assessment, parents reported insufficient information about appropriate referral channels. During assessment, they were unfamiliar with procedures, experienced fatigue due to multiple visits, and perceived professionals as indifferent, while social workers were regarded as supportive. After assessment, parents expressed that report explanations were too brief; while many accepted the diagnostic results, some questioned their accuracy, believing that professionals had limited time to understand their child. Despite these challenges, positive feedback included appreciation for the empathy of social workers and, in some cases, supportive communication from physicians. Overall, the study highlights gaps in communication, limited parental participation, and a lack of professional awareness of parents’rights to be involved in the assessment process. Practical recommendations include simplifying assessment procedures, providing parents with preparatory information, encouraging professionals to adopt empathetic communication, and promoting parental preparation through daily observations and records. Future research should expand to diverse cultural and socioeconomic contexts to enrich understanding of parental involvement in medical evaluations. |
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