一位史蒂芬強森症候群病人臨終照護經驗

Nursing Experience in Dying Patient of Steven-Johnson Syndrome

本報告是探討一位史蒂芬強森症候群末期的患者入住加護病房期間生理變化與臨終心理的衝擊，筆者以Gordon健康功能型態進行評估，發現個案有自主性換氣失能、組織完整性受損、疼痛及預期性哀傷四個問題。筆者除給予個案生理照護外，並運用溝通技巧，同理支持使其勇於表達內心感受，以減輕哀傷反應及心靈困擾。經由鼓勵案家一起做生命回顧，促使家庭成員陪伴個案安詳走完人生最後一段路。

This report intended to research the psychological and physiological shock of a patient who was in the lastphase of Stevens-Johnson Syndrome in an Intensive Care Unit. Physical assessment was guided by the Gordonfunctional health status. There were five problems including inability to sustain spontaneous ventilation,impaired tissue integrity, pain, anticipatory grieving and spiritual distress. The author gave the patient thepsychological nursing care and communicated with her. The author supported what the patient thought, so thepatient could bravely express her ideas. The family members could then face the death of the patient. Furthermorethe patient could peacefully face her own coming death. It is hoped this report can give other colleaguesa reference of for giving care in similar situation.