翻牆的記憶－－身心障礙者的手足關係

Sibling relationship of people with disabilities

本研究希望瞭解身心障礙者的手足關係，且在成長歷程中，手足對障礙的想像與看法。目的有2點：一、瞭解身心障礙者與其手足對彼此的看法；二、瞭解雙方如何詮釋障礙。本研究以深度訪談訪進行資料蒐集，有4位特殊手足及4位障礙手足參與研究，研究參與者共計8位。研究發現，在手足關係方面，障礙是手足雙方的對話橋梁、障礙手足有認同議題、手足排序的變動和手足間有無法說出的秘密；在障礙方面，障礙是藏鏡人以及其現身的過程，及手足雙方如何面對這個藏鏡人。最後，根據上述的發現進行相關的討論，且提出相關建議。 The purpose of this research is to understand the sibling relationship and how they think about disability in the process of growing up in a family with special need. There are two objects: 1. The opinions to each other between siblings. 2. The comments toward “disability” from the special-siblings. The data of this research is collected via in-depth interviews. There are 8 interviewees in the research, including 4 disables and 4 special-siblings. It's our findings that in the cases of siblings, the way they see and interact with each other shows that the disability can possibly be a bridging character in communications. The discoveries can be sorted into four domains, including which is mentioned above, and the others are: recognition of disabled siblings, the switching sequence of siblings and the un-spoken secrets between them. As for “disability” itself, the process it shows up and the way how the siblings face are discussed in this research. Finally, these findings are discussed and the research provides several suggestions.