脊髓損傷者主體性知識的探究：一個以「排便問題」進行協同探究的實例

The Perspective of Spinal Cord Injury Survivors:　A Collaborative Inquiry on Bowel Inertia

脊髓損傷者生活重建的過程中有許多有苦難言之處（1），本文是作者與桃園縣脊髓損傷潛能發展中心（2）的6位脊髓損傷者以協同探究的方式，針對其中的排便問題所進行的行動研究。透過不斷地省思及對行動的反映，發展出四個階段的協同探究歷程，把過去對排便問題去脈絡化的認識與理解，還原其生活中的面貌，並整理成可溝通與對話的文字。最後，從彼此的對話與反思中，進而辨識了醫療機構與脊髓損傷潛能發展中心兩個不同的組織系統, 所發展出來的態度與知識的差異。透過協同探究的歷程，不但確立以傷友為主體的脊髓損傷團體之知識發展的重要性，也使得作者與該團體的協作關係更為紮實。

The recovery process of a spinal cord injury survivor encompasses many unspoken difficulties. This study adopted an action research approach, and explored the difficulties associated with bowel inertia of 6 spinal cord injury survivors at Taoyuan County Potential Development Center for Spinal Cord Sufferers. Through a collaborative inquiry process, the bowel inertia of spinal cord injury survivors was de-contextualized; it was brought back to its original state as it appeared in life, and was reorganized through writing to be communicated with others. In addition, the differences between the medical system and the Potential Development Center for Spinal Cord Sufferers are discussed. The collaborative inquiry process helped the author maintain a firm collaborative relationship with the spinal cord injury survivor group, and demonstrated the importance of an independent development of knowledge in spinal cord injury support groups.