攜手共築抗癌路──結合家庭與病友的賦能癌症整合性照護

Building the Path of Cancer Care Together: Integrating Family and Peer Empowerment Into Comprehensive Cancer Care

隨著癌症照護需求日益複雜，傳統以病人為中心的模式已難以全面回應病人及家庭的需要。近年來，「賦能」逐漸受到重視，著重於提升病人與家庭的自主性、自我效能與參與感；同時，「以家庭為中心的照護」（family-centered care）也成為癌症照護的重要方向。病友團體與支持性平台則可幫助病人及家屬獲得資訊、強化因應策略，進而重建自信、角色功能與心理韌性。本文從理論基礎出發，探討賦能、以家庭為中心的照護與病友團體在整合性照護中的關聯，並透過實證文獻回顧，呈現賦能策略於癌症病人、家庭與病友的應用成果。研究顯示，賦能介入能有效提升病人生活品質、促進家庭參與並增強照護信心。然而，臨床實務仍面臨文化差異、專業人力不足以及缺乏適切評估工具缺乏等挑戰。最後，本文從教育、研究、政策與臨床實務四方面建議，期能推動兼具文化敏感性與家庭導向的整合性照護模式，以更全面回應病人及家庭的需求的癌症照護模式，進一步實現以人為本的癌症照護。

Given the increased complexity of cancer care needs, the traditional patient-centered model is no longer sufficient to address comprehensively the needs of patients and their families. In recent years, the concept of“empowerment”has gained growing attention. Empowerment emphasizes the enhancement of autonomy, self-efficacy, and sense of participation among patients and their family members. Family-centered care has also emerged as an important direction in cancer care. Moreover, patient support groups and supportive platforms are being employed to further assist patients and families to access information, strengthen coping strategies, and rebuild confidence, role functioning, and psychological resilience. In this paper, the theoretical underpinnings of these concepts are first explored to highlight the interconnections among empowerment, family-centered care, and patient support groups within integrated care. Secondly, the outcomes of empowerment strategies applied to cancer patients, families, and peer groups are presented based on a review of the relevant empirical literature. The findings indicate that empowerment interventions can effectively improve patient quality of life, promote family involvement, and enhance confidence in care. However, clinical practice continues to face challenges such as cultural differences, workforce shortages, and a lack of appropriate evaluation tools. Finally, recommendations in the realms of education, research, policy, and clinical practice are provided with the aim of advancing culturally sensitive and family-oriented integrated care models. These approaches may address the needs of patients and families more comprehensively and ultimately realize a more person-centered model of cancer care in education, research, and policy to further advance culturally sensitive, family-oriented, and integrated models of cancer care that more fully meet the needs of patients and their families.