從自立支援照顧角度敘說一位中風婦女的生命故事

Telling the Life Story of a Stroke Survivor from the Perspective of Independent Supportive Care

腦血管病變必須要在六個月內的黃金期積極復健治療，有助於恢復日常生活機能，避免嚴重失能而長期臥床的無尊嚴生活。本研究探討受訪者的生命歷程故事及中風後的心路歷程、復健過程與自立支援照顧技巧相同與不足之處、家屬以參與式體驗觀察照顧角度檢討復健歷程。採用質性研究方法，透過半結構式訪談大綱進行深度訪談，驗證自立支援照顧在中風患者之照護可行性，結論如下：（1）艱苦環境中必須保持樂觀和積極的態度勇往直前；（2）保持愉快心情與注重自己的健康才是人生最重要的資產；（3）注意患病之後自尊心與尊嚴的心理問題，更需要家人關心、鼓勵、支持與陪伴；（4）個人堅定的恢復健康意識是重要關鍵，家人經濟負擔考量也是患者復健動力的主要來源；（5）中風後必須勤復健、患者心理健康支持非常重要、善用正確的輔具、選擇合適的醫師和醫療團隊對於成功的復建過程至關重要；（6）自立支援照顧以喝吃拉動基本生活照顧為首要，提供多元化活動，強調患者的意願與尊嚴，以提升健康和生活品質。深入理解自立支援照顧對於中風患者與年長者所需的重要性與價值，並將四大基本照顧融入生活中，達到自己在生活上能夠獨立自主、提高生活品質。研究結果可以提供長照家庭及專業照顧人員參考，可減少醫療資源及家庭社會負擔。

Stroke patients must actively engage in rehabilitation therapy within the critical six-month golden period to aid in regaining functional abilities for daily life and avoid the risk of severe disability and prolonged bedridden and undignified living. This study explores the life stories and emotional journeys of respondents following a stroke, the rehabilitation process, similarities and shortcomings of self-reliant support and care techniques, and the caregiving perspectives of family members through participatory experiential observation. Using a qualitative research approach with in-depth interviews guided by a semi-structured outline, the feasibility of self-reliant support and care in stroke patient caregiving is verified, with the following conclusions: (1) Maintaining optimism and a proactive attitude in challenging circumstances is crucial. (2) Maintaining a cheerful outlook and prioritizing personal health are life's most valuable assets. (3) Addressing self-esteem and dignityrelated psychological issues after illness requires family care, encouragement, support, and companionship. (4) A strong determination to recover is key, and considering the financial burden on family members is a significant motivator for patient rehabilitation. (5) Diligent rehabilitation, psychological support for patients, proper use of assistive devices, and choosing the right physicians and medical teams are critical for a successful recovery process. (6) Self-reliant support and care primarily focus on the basic activities of daily living, offer diverse activities, emphasize patient's preferences and dignity to enhance health and quality of life. A deep understanding of the importance and value of self-reliant support and care for stroke patients and the elderly is vital. Incorporating the four fundamental care aspects into life allows individuals to be independent, improve their quality of life, and attain a sense of self-sufficiency in daily life. The research results can provide reference for long-term care families and professional caregivers, potentially reducing the burden on healthcare resources and families' social and financial responsibilities.