重病中斷母職角色的家庭護理經驗

Home Caring for Motherhood Disrupted Individuals with Critical Illness

本文敘述一位47歲母親因罹患瀰漫性泛細支氣管炎，需長期依賴呼吸器而中斷母職角色的家庭護理經驗，筆者照護期間為2012年11月6日至11月22日，運用Friedman(2003)家庭評估模式(Family Assessment Model)經由直接照護、觀察、會談收集家庭基本資料、家庭發展階段及任務、家庭環境、家庭結構、家庭功能及家庭壓力因應方式，歸納分析案家有「家庭運作過程改變」，個案有「母職角色扮演改變」、「低效性呼吸型態」等問題。筆者透過直接照護、傾聽、持續關懷陪伴、教導肺部運動、安排家庭會談、建立家庭溝通橋樑、聯絡社工協助辦理相關補助，協助個案維持最關心的母職角色功能，促進母女情感交流，並藉由持續母職的意志力增加個案克服疾病的困難，也鼓勵個案家人間互相表達情感，強化家庭內在溝通、關懷功能，整合家庭內、外資源因應家庭成員生病，協助家庭發揮潛能維持家庭功能。

This article described the nursing experience of caring a motherhood-disrupted 47-year-old patient who suffered from diffusive panbronchiolitis and had to rely on an respirator to breath normally. She was taken care by the author from November 6th to 22nd, ,2011.By using the Friedman Family Assessment Model, the author was able to collect basic information of the family, for instance: stages and mission of the family development; the environment; family structure; family function and pressure due to patient’s illness. After classifying and analyzing the collected, we revealed that not only the family had undergone family process changes but also the patient herself had experienced changes: her motherhood was interrupted and she suffered from ineffective breathing pattern. By direct –caring, listening, accompany, teaching the patient breathing exercises, arranging family meetings,bridging family communication, and seeking financial supports through social workers, the author was able to assist the patient continuing her motherhood as well as improving her relationship with her daughter. Besides that, helping the patient to continue her motherhood was considered as another method to boost the patient’s willingness to fight against the disease. Moreover, the author not only encouraged the patient and her family members expressing their feelings toward each other in order to strengthen their family communication and caring function, but also kept her family functioned normally by integrating the exterior and interior resources of the family to deal with the incident.