一位青少女罹患威爾森氏症之護理經驗

A Nursing Experience of a Female Adolescent with Wilson’s Disease

本文運用Gordon十一項功能性健康型態評估，描述一位青少女罹患威爾森氏症導致肢體活動受限，因外觀改變感到焦慮之護理經驗，2011年11月15日~30日期間，以身體評估、會談、觀察及參閱病歷等方式評估，發現個案有自我照顧能力缺失、身體心像紊亂、焦慮等健康問題。護理期間依青少年身心發展特質，給予正向肯定，使其接受右手無力並正視身體改變，協助個案採漸進性方式進行等長、等張及全關節運動以訓練肌力，促使個案能獨立完成自我照顧，提供醫療知識來強化個案對疾病認知，以減輕不安，並降低疾病復發率，達到整體性照護。

This article reported a nursing experience of a teenage female patient with Wilson’s disease who were experiencing restricted limb movement, and anxiety caused by change in appearance. The nursing period lasted from Nov. 11th to 30th, 2011. By employing Gordon’s functional health patterns as an assessment framework, data were collected via physical assessment, interviews, observations, and medical record review. The patient was found to have self-care deficit, body image disorder, and anxiety. During the nursing period, the following nursing interventions were introduced in the implementation of holistic nursing: giving positive recognitions according to the indicators of adolescent physical and mental development to encourage to patient to accept muscle weakness to her right arm and face body alterations; assisting the patient to gradually engage in isometric, isotonic, and ROM (range of motion) exercise; encouraging the patient to regain self-care ability; and providing medical knowledge to enhance the patient’s recognition of the disease, to relieve her anxiety, and to reduce the chance of relapse.