臍帶血移植後病童之主要照顧者照護經驗探討

The Experiences of Caregivers Caring for Children With Cord Blood Transplantation

背景：隨著移植技術不斷的精進，臍帶血移植的成功率也越來越高，但主要照顧者對於移植後面臨的照護問題及相關經驗不足，進而造成主要照顧者的壓力，目前有關臍帶血移植病童之主要照顧者照護經驗的相關研究極缺乏，突顯有關臍帶血移植之主要照顧者照護經驗是未來值得關注的重要議題。
目的：探討臍帶血移植後病童主要照顧者之照護經驗。
方法：採用研究人類生活經驗的現象學研究方法，由研究者以半結構式的訪談指引與10位受訪者進行面對面的深入訪談。
結果：依Colaizzi分析法進行資料分析，整理出三個主要概念：(一)情緒的過渡；(二)背負無形的壓力；(三)尋找有意義的照護方法。
結論：實務應用 本研究結果可提供建構接受臍帶血移植之主要照顧者返家後教育之模式，以降低臍帶血移植後主要照顧者的壓力與不安。

Background: Advancing technology has greatly increased cord blood transplantation (CBT) success rates. However, transplant patient caregivers may encounter a great deal of stress related to knowledge deficits with regard to post-transplant care and lack of relevant care experience. Existing studies for CBT primarily focus on investigating the transplant process and survival rate. Studies on the experience of caregivers caring for CBT children are extremely scarce. It is important for future studies to explore the care experiences of CBT caregivers.
Purpose: This study explored the experiences of primary caregivers responsible to care for pediatric patients after CBT.
Methods: Researchers conducted a phenomenological study of lived experiences using qualitative interviews that were in-depth, face-to-face, and semi-structured.
Results: Colaizzi analysis identified three themes, as follows: (1) emotional transition; (2) bearing indescribable of stress; (3) searching for management in meaningful resolutions.
Conclusions / Implications for practice: Study results can provide valuable insights and information to healthcare providers developing preparatory educational programs for caregivers of discharged CBT patients. Findings can help alleviate care stress and anxiety in caregivers and nurses.