一位愛德華氏症新生兒及其父母之加護護理經驗

Nursing Experience for A Newborn with Edwards Syndrome and His Parents in An Intensive Care Unit

本文敘述一位愛德華氏症新生兒及其父母之加護護理經驗。照顧期間自101年7月16日至 101年10月29日，筆者透過觀察、身體評估及與父母互動等方式收集資料，並經由整體性評估 確認個案及其父母主要之護理問題有：氣體交換障礙、急性疼痛及哀傷。筆者運用發展性照護及寧握護理，改善個案氣體交換障礙及急性疼痛問題；透過引導表達內心的感受及情緒宣洩，陪伴 案父母走過哀傷。期望藉此護理經驗，能引發護理人員對先天性畸形兒及其父母照顧上的重視，並落實發展性照護於臨床照護實務。

The purpose of this article was to describe a nursing experience for a newborn with Edwards syndrome and his parents in an intensive care unit. Data were collected by observations, physical assessment, and parental interviews from July 16 to October 29, 2012. Holistic assessment was used to analyze the information. The main issues identified included impaired gas exchange, acute pain, and grieving. By using developmental care and containment, the author improved the baby' health problems of impaired gas exchange and pain. By leading the parents to express feelings and release emotions, the author accompanied the parents go through grieving. We hope this nursing experience can cause the attention for newborn with congenital malformations and his parents, and fulfill developmental care in clinical nursing care.