| 中文摘要 |
為回應現代醫療資訊隱私面臨之威脅,衛生署曾委託研究機構研擬保護病患醫療資訊隱私與安全之法案。如同許多其他我國法律的草擬,在立法建議報告中,美國法扮演了重要的腳色。然而,單純模仿美國法而未思考文化之差異將產生問題。在台灣以及許多其他東亞國家存在一特殊現象,即在診斷出絕症時,醫師常告知病患之家人而非告知病患本人。此一現象和美國的法律精神與規制有所扞格。本文之目的,即在分析及回應直接移植美國法至台灣可能產生的問題。在贊同資訊隱私法律改革的同時,本文主張台灣之新醫療資訊法規,應該保留些許空間給目前的醫療實踐,並同時意識到多樣的、變遷中的文化態度。具體言之,新法應要求或提醒醫療人員注意病患的文化偏好,並保留些許裁量空間給醫師,容許其在特殊情況下不告知病患或決定揭露資訊給家屬。此外,新法應包含定期重新檢視之條款,以跟隨文化變遷的步伐,並要求、促進或支援醫療專業倫理及教育的活潑發展,朝向更具有文化意識及對話的醫療環境。 |
| 英文摘要 |
The Department of Health in Taiwan plans to propose a new law for protecting the privacy and security of patient health information. As is the case in the drafting of many other statutes in Taiwan, American law and legal assumptions have played a significant role when researchers have provided legislative suggestions in the development of this new law. However, imitating American law without contemplating cultural divergence is problematic. In Taiwan, as well as in many other East Asian countries, when a patient is diagnosed with a fatal disease, physicians often inform family members but withhold the diagnosis from the patient, even if the patient is competent. This practice diverges from American legal assumptions and regulations. This article aims at analyzing and responding to the problem of transplanting American law outright to Taiwan. While I support the reform of information privacy law, I claim that Taiwan's new law should leave room for its current medical practice, along with awareness of various and changing cultural attitudes. Specifically, the new law should require physicians to be aware of patients' cultural preferences, and should give physicians room to consider withholding information from patients and disclosing information to families in certain circumstances. In addition, the new law should require itself to be reexamined regularly to follow cultural changes, and should include provisions to require, prompt, or support vigorous development of medical professional ethics and education for the enhancement of cultural awareness and dialogue. |
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