探討一位腦性麻痺患孩父親從發現患孩異常至治療階段的經驗

Explore a Father’s Experiences of a Child with Cerebral Palsy: From Discovering Abnormality to Treatment

本篇個案研究在探討一位腦性麻痺患孩父親從發現患孩異常至治療階段的經驗感受，採深入訪談法(in depth interview)收集資料。收案期間於94年5月18日至6月18日止，收集資料的地點在個案家中，與個案共接觸四次包括諮詢輔導與電話訪談，每次的接觸均寫成行為過程紀錄共四篇，再以內容分析法分析歸類，以進行資料處理。其結果發現五類項目：一、發現患孩動作發展偏離常軌；二、害怕未來患孩有負面的身體心像；三、擔心患孩的身體狀況；四、竭力執行父職角色；五、加深父子親情。期望本篇個案研究報告結果，可作為護理人員了解類似個案的經驗感受，以便提供資訊及照護的技巧。

This case study explored the experiences of a father of a child with cerebral palsy after discovering his child’s abnormality. Data were collected by four in-depth interviews at the case’s home from May 18, 2005 to June 18, 2005. This process was recorded and transcribed verbatim. Content analysis was adopted to analyze and categorize the data. The results revealed five categories in this study. They were: (1) discovering the child’s development deviated from the norm; (2) fear of the child being influenced by negative body image; (3) worrying about the child’s physical health; (4) fulfilling his responsibility to the father’s role, and (5) establishing father-child bonding relationship. The results of this study can provide health professionals with better understanding of the experience of a father of a child with multiple disabilities.