癲癇學童生活問卷之發展與信效度檢定

The Development, Reliability and Validity of the Quality of Life Scale for Taiwanese School-Aged Children with Epilepsy

本研究目的為發展本土化適用於癲癇學童的生活品質量表。以7 歲至15 歲、非頑固型癲癇、確定癲癇診斷3 個月、持續服用抗癲癇藥物者，學童可以自行填寫問卷者為研究對象。所收集資料以SPSS 15.0版處理資料。研究共獲得188 位學童參與研究。自行發展的「癲癇學童生活品質量表」共20 題，總量表的內在一致性為0.804，因素分析獲得5 個面向，包括個人生活需求、家人互動、課業學習、疾病影響及感受烙印等五個面向，各面向之內在一致性自0.52-0.79。總解釋變異量為59.58%。本研究所發展的「癲癇學童生活品質量表」，為台灣地區首次針對學齡期癲癇兒童可以自填的研究量表，經過嚴謹的信、效度檢驗，建議可以在臨床應用，藉此獲知兒童的生活品質狀況，以促進癲癇學童的生活品質。

The purpose of this quantitative study is to develop and validate the questionnaire of quality of life (QOL) of children with epilepsy, since there is no Chinese version of QOL questionnaire for Taiwanese epileptic school-aged children. School-aged children with epilepsy were recruited from pediatric neurological clinics in several medical teaching hospitals. The inclusion criteria included children aged from 7-15 with non-intractable epilepsy, giving epilepsy diagnosis over 3 months and continuing taking epileptic medicines and, having the ability to fill out the questionnaire themselves. All data were encoded into the computer, and used the SPSS 15.0 packaged software for statistical analysis. There were 188 children participating in this study. The QOL questionnaire consists 20 of items that can be divided into five domains in terms of feeling of stigma, family interaction, school learning, impact of the disease, and personal basic needs. The internal consistency analysis by Cronbach's alpha was 0.804 for the total questionnaire and 0.505-0.791 for sub-domains of QOL. A total questionnaire explained 59.58% of the variance. This study approves the questionnaire is fit for evaluating the QOL of school-aged children with non-intractable epilepsy in Taiwan. We suggest using the self-reported scale to early detect epileptic children's QOL in order to provide proper intervention programs to improve their QOL.