| 英文摘要 |
Systemic lupus erythematosus (SLE) is an autoimmune disease that harms all of the bodily organs through inflammatory reaction. When lupus nephritis is complicated by pulmonary edema then patient mortality is increased. In this article, we describe and share the nursing experience for a 30-year-old women with SLE for over 13 years who presented with bilateral legs edema, respiratory distress as well as feelings of unease, fear and grief from extreme stress. Between January 25, 2014 and March 30, 2014, we used Gordon’s 11 Functional Health Patterns to evaluate this patient through interviews, observations, physical assessment, medical records and other methods of data collection. We also confirmed major health problems such as excess fluid volume, risk of infection and anticipatory grief. Through proactive concern, empathy and other support skills, we established a good nurse-patient relationship. We used individualized nursing expertise to produce a hemodialysis everyday self-care manual. By actively communicating with the medical care team, the patients understanding of hemodialysis and catheter care was enhanced. We eventually enabled the patient to take proper care of herself in daily life and prevented catheter-related infection. On the psychosocial level, we use active expressions of concern to encourage the patient to express her feelings. With the assistance of the hemodialysis support group, we helped her adopt a positive attitude to the physical and mental effects of her disease. Finally, we helped her to rebuild her self-esteem and come to terms with long-term hemodialysis. We hope this clinical nursing experience will provide a useful reference for personnel involved in clinical practice during the initial care of patients undergoing time hemodialysis for the first time. |
