全身性紅斑狼瘡婦女生育意向、規劃與懷孕經驗之分析

Analysis of Fertility Intention, Fertility Planning and Pregnancy Experience in Women with Systemic Lupus Erythematosus

本研究希望針對全身性紅斑狼瘡育齡婦女其生育意向、生育規劃及懷孕經驗進行分析。自2017年8月15日至2018年10月2日以結構式問卷收集資料，對象為20～40歲全身性紅斑狼瘡女性。以SPSS 22.0軟體進行統計，有效問卷144份。結果顯示79.2%認為一個家庭應有2個小孩，但僅38.9%希望生育2個小孩，高達88.2%患者擔心懷孕過程發生意外，73.6%對生育規劃秉持沒有特別想不想生的看法，對擁有小孩的期望，僅有4.9%排除萬難一定要生，且婚姻狀況與生育意向、生育規劃、希望有小孩的期望程度及會不會考慮領養小孩無顯著的相關性。多數患者認為，影響生育最主要原因是自己的健康狀態，針對此現況，若能提供計劃性懷孕、安全性妊娠等相關諮詢和規劃，以降低對妊娠風險的焦慮，提升生育意願與成功生產，是未來此領域專家應關注的議題。

We aimed to examine the concerns of fertility intention, fertility planning and pregnancy experience among women of reproductive age with systemic lupus erythematosus (SLE). Data collection was conducted with a structured questionnaire from August 15, 2017 to October 2, 2018. Female patients aged 20 to 40 were included. The analysis was processed with SPSS 22.0 software. A total of 144 valid questionnaires were received in the study. The analysis showed 79.2% of the patients thought that it was ideal to have two children in a family. However, only 38.9% of them planned to do so. Up to 88.2% of the patients with SLE worried about complications during pregnancy. A total of 73.6% of patients had no particular intention of conception. Only 4.9% were eager to have a baby at any cost. There was no significant correlation between marital status and fertility intention, fertility planning, eagerness to have a baby and consider adopting a child. Most patients expressed the main reason for fertility is their health status. To improve the outcome, medical personnel should provide the preconception counseling and risk assessment for the patients. Further efforts focusing on this issue are warranted.