智能障礙者家屬使用長照資源對其照顧影響之研究

A Study on the Impact of Family Care for the Intellectual Disabilities by Long-term Care Resources

每一個人在所有成長階段最關鍵的里程碑莫不過是找到適合的人一同共組家庭，組成家庭後最期待就是等待新生命的誕生，但是上天總是給予人們挑戰，發現孕育中的寶寶如果有些缺陷，隨著生命意識抬頭，家長為了這珍貴的生命不怕辛苦也會堅持把孩子生小來，但現實是殘酷的，在孩子出生後開始需要面臨龐大的照顧壓力。本研究目的是探討長照資源對家中有智能障礙者家屬之照顧影響，本研究以立意取樣的方式，選擇兩位年齡為60歲女性和一位68歲的女性家屬為本研究的研究對象，並進行半結構式的訪談。經逐字稿的整理與分析，研究結果為：（1）受訪者在家庭中扮演主要照顧者，雖疲乏、無奈，但仍全心接納智能障礙子女；（2）受訪者照顧智能障礙子女面臨多樣化的壓力，最大的困境是擔心未來沒人照顧其子女；（3）受訪者對長照資源的認知來自相關人員的告知，資源的使用多為陪伴與送餐；（4）受訪者使用長照資源服務前後，發現除了喘息服務，其他對照顧影響改變不大，有時還覺得很不便。

The most critical milestone for everyone in all stages of growth is to find a suitable person to form a family together. After forming a family, the most expectative thing is to wait for the birth of a new life, but God always challenges someone. Once finding out the baby is defective during pregnancy, through the rise of life consciousness, parents are not afraid of hard work for this precious life and will insist on giving birth to their children, but the reality is cruel. After the child is born, a lot of care needs to be overcome and brings about massive pressure. The influence of long-term care resources on the care of the family members of the mentally handicapped at home. The family members of two 60-year-old women and one 68-year-old woman were selected as the subjects by purposive sampling method, and semi-structured interviews were conducted. After collating and analyzing the verbatim manuscripts, the results of the research were as follows: (1) The interviewee is the main caregiver in the family. Although tired and helpless, they still accept mentally handicapped children wholeheartedly. (2) Respondents face diversified pressures in caring for children with mental disabilities. The biggest dilemma is that they worry that no one will take care of their children in the future. (3) Respondents’ knowledge of long-term photo resources comes from the notification of relevant personnel, and the use of resources is mostly for accompany and meal delivery. (4) Before and after using the long-term photo resource service, the interviewees found that apart from the respite service, there was little change in the impact on care, and they sometimes found it very inconvenient.