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篇名
正確、知情與對等──有溫度的預立醫療照護諮商   檔案下載
並列篇名
Rightness, Well-Informed and Equality: Advanced Care Planning with Attentive Care
作者 黃勝堅葉依琳田恩慈田麗珠
中文摘要
病人自主權利法為亞洲第一部以病人為主體的專法,其中針對特殊拒絕醫療權的部分提供國民可透過預立醫療照護諮商服務,完成其預立醫療決定之簽署,保障末期病人、永久植物人、不可逆轉之昏迷、極重度失智或其他政府公告之重症患者,享有決定接受或拒絕何種維持生命治療或人工營養及流體餵養的權利。本文透過以病人自主權利法為基礎發展預立醫療照護諮商的脈絡,整理出實務執行時如何與過往所推動之預立醫療自主計畫理念、法令要求層面相互協力配合,進而闡明預立醫療照護諮商的運作模式,並說明在建置過程中如何以「4P」為核心基礎,即透過個別化、促發參與、預測情境、預防受苦來提供兼顧正確知情與家庭共融的預立醫療照護諮商服務,以俾使達到病人自主權利法維護善終權益、尊重病人自主、促進醫病和諧的願景。
英文摘要
Patient Right to Autonomy Act is the first law which takes patient as the subject. In that could patient have the right to refuse taking life-sustaining treatment with the advanced decision by signing it up. It could guarantee terminal ill, permanent vegetative state, irreversible coma, severe dementia or other disease conditions which were announced by the government to have the right to accept or refuse life-sustaining treatment or artificial nutrition and hydration. By developing the context of advance care planning with the basic of Patient Right to Autonomy Act, it would be analyzed in this paper how the idea of advanced decision in practice and the norms cooperate with each other. The model of the advanced care planning would also be explained. Taking 4Ps (personalized, participatory, predictive and preventive) as the core basics, the advanced care planning could offer possibility to realize rightfully and to make family members harmonize with each other. The aim of Patient Right to Autonomy Act that guarantees the right to natural death, respects the autonomy of patients and promotes the relationship between physicians and patients, could in the end be achieved.
起訖頁 057-073
關鍵詞 安寧緩和醫療病人自主權利法預立醫療決定預立醫療照護諮商hospice palliative carePatient Autonomy Actadvanced decisionadvanced care planning
刊名 月旦醫事法報告  
期數 201901 (27期)
出版單位 元照出版公司
該期刊-上一篇 病人自主權利法對於告知後同意理論之影響
該期刊-下一篇 後記──一個漸凍人談「善終」
 

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