英文摘要 |
Medical researchers identified Hansen’s disease (HD) in the late 19th century, but it wasn’t until the mid-20th century that physicians utilized diaminodiphenyl sulphone (DDS). Drawing on the sociology of medical work, this article discusses how medical communities’ understandings of and practices regarding a disease shaped and were shaped by a medical object. In becoming a cure for HD, DDS facilitated changes to the existing HD medical network and the double disappearance of a group of patients (in particular, the group living in the Losheng Sanatorium). Examining medical practices in the context of Taiwan before and after the introduction of DDS, I found that the disease causality behind the use of DDS provided a way of conceptualizing HD within a prevention framework and a way to reconfigure the medical network’s technologies and personnel. Cheap and easy to use, DDS facilitated the establishment of an infrastructure that included standardized slit skin examinations, prevention outreach, and skin clinics. This network facilitated the disappearance of patients in two senses: patients as persons disappeared from the cosmology of HD medicine, and the history of HD disappeared. Under this double disappearance, patients were assigned a disease category that does not correspond with their experiences and were implicated in their own illness. The paper specifies the social effects of the adoption of DDS by illustrating that it was the same medical network that was reconfigured by DDS that marginalized patients whose experiences deviate from the medical views of the network. |