一位疑似嚴重急性呼吸道症候群病嬰之母親的體驗

The Experience of a Mother of a Baby with Suspected SARS

嚴重急性呼吸道症候群(severe acute respiratory syndrome, SARS)於2002年疫情爆發大多感染成人，台灣九歲以下兒童感染SARS者佔總罹患率之2.17%，對疑似及可能的SARS案例需隔離到負壓病房，亦禁止家人的探視，因而常引發父母的焦慮及不確定感。現今研究大多探討SARS對醫護人員或學生所造成的壓力及因應方式，卻未有研究探討SARS病患或其家屬之各項經驗。然而重視感染控制SARS及對醫療人員造成威脅的同時，也應重視對病患家屬所造成的衝擊。本個案研究以半結構式開放性會談方式訪談一位母親，分享其孩子被醫師診斷疑似SARS及被隔離時的感受及經驗，以內容分析法萃取及歸納現象主題。個案資料分析為兩部份，包括壓力源及因應策略：壓力源為：（一）對病嬰疾病快速惡化之無助感；（二）對病嬰被隔離產生不確定感；（三）媒體渲染及誇大病情造成不安。因應策略為：（一）隱藏自己悲傷的情緒，並堅強成為家庭及病嬰的支柱；（二）對他人之詢問採取否認及隱瞞之態度；（三）運用民間祈福方式並請求神明的保佑及再保證；（四）以正向思考的念力強化自我信念；（五）裝備人及環境以度過此一危機；（六）隔離後，重新建立母女之依附關係。筆者希望藉由分享此個案的經驗，以期做為醫療專業人員的參考，進而可同理母親的經驗而提供其所需要的照護措施。

Severe acute respiratory syndrome (SARS) broke out in 2002. However, there have not been any articles focusing on the parent of a child with SARS. This qualitative study described the experience of a mother of a baby with suspected SARS and being isolated. The findings indicated the sources of stress included: 1. feeling hopeless with the condition of a baby with SARS, 2. uncertainty about isolation, 3. uneasy when the media exaggerates the baby’s condition. The coping strategies were: 1. hiding sadness and becoming a support for her baby and her family, 2. denying and concealing, 3. praying for blessing and reassurance and using folk customs, 4. adopting positive thinking to enhance her beliefs, 5. equipping the family and living environment, 6. rebuilding the attachment between the mother and her baby. Learning from the experience is a valuable lesson for nurses to provide comprehensive care to patients and their families.